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Enabling Ethical Data Sharing

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Resources

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BROCHURES

  • Health - Sapior De-identification (PIP) Appliance
  • Health - Concerned about the Privacy of Patient Data
  • Health - Balancing Commissioning needs with Data Privacy
  • Health - Data Privacy Compliance: Legal requirements and DH policy
  • General - Reduce Privacy Risks - De-identify data first
  • Technical - Sapior Redbridge
  • ARTICLES/ANALYSIS

  • Pseudonymisation and Secondary Uses, The Caldicott Guardian, Edition 10, April 2009
  • Blurring health data widens sharing options, Health Informatics Now, Volume 1 Number 4, June 2007
  • Adopting a Pseudonym can Preserve Privacy, Butler Group Review, September 2003
  • Butler Group Technology Audit
  • PRESENTATIONS/PAPERS

  • An ethical framework for sharing patient data without consent published in BCS Informatics in Primary Care
  • Briefing: Health Intelligence and Information Governance - P-Day is less than a year away: Don’t be an April Fool
  • Minimising ID Theft When Sharing Personal Data Using Pseudonymisation given at Privacy Laws & Business 19th Annual International Conference, 3-5 July 2006
  • A Privacy-Enhancing Eco-System (or a Privacy Risk Reduction Framework & how to make organisations care)
  • EUROPEAN COMMISSION ARTICLE 29 DATA PROTECTION WORKING PARTY

  • Opinion 4/2007 on the concept of personal data
  • BULLETINS/NEWSLETTERS

  • November 2008 - Information Governance and Health Intelligence
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