Resources

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BROCHURES

• Health – Sapior De-identification (PIP) Appliance
• Health – Pseudonymisation Implementation Project – coming soon
• Health – Concerned about the Privacy of Patient Data
• Health – Balancing Commissioning needs with Data Privacy
• Health – Data Privacy Compliance: Legal requirements and DH policy
• General – Reduce Privacy Risks – De-identify data first
• Technical – Sapior Redbridge

ARTICLES/ANALYSIS

• Pseudonymisation and Secondary Uses, The Caldicott Guardian, Edition 10, April 2009
• Blurring health data widens sharing options, Health Informatics Now, Volume 1 Number 4, June 2007
• Adopting a Pseudonym can Preserve Privacy, Butler Group Review, September 2003
• Butler Group Technology Audit

PRESENTATIONS/PAPERS

• Sharing without centralising data an alternative to Care.Data (central pot) presented Jan 2014 to HSCIC review on viability of Pseudo at Source
• An ethical framework for sharing patient data without consent published in BCS Informatics in Primary Care
• Briefing: Health Intelligence and Information Governance – P-Day is less than a year away: Don’t be an April Fool
• Minimising ID Theft When Sharing Personal Data Using Pseudonymisation given at Privacy Laws & Business 19th Annual International Conference, 3-5 July 2006
• A Privacy-Enhancing Eco-System (or a Privacy Risk Reduction Framework & how to make organisations care)

BULLETINS/NEWSLETTERS

• November 2008 – Information Governance and Health Intelligence

EUROPEAN COMMISSION ARTICLE 29 DATA PROTECTION WORKING PARTY

• Opinion 4/2007 on the concept of personal data

DEPARTMENT OF HEALTH

• Pseudonymisation Implementation Project